Stigma can make things worse for workers who experience migraines: study

Minneapolis — Feelings of shame or embarrassment, on top of physical symptoms, can cause migraine-sufferers to miss additional workdays, researchers conclude.

The researchers used data from more than 59,000 people who completed a survey about their migraines. Survey questions included, “How often have you felt that others viewed your migraine …

  • As a way to get attention?”
  • As something that made things difficult for your co-workers or supervisor?”
  • With a lack of understanding of the pain and other symptoms?”

The survey also included questions on how many workdays were missed over the previous three months.

Overall, 41% of the respondents reported experiencing an average of four or more “headache days” a month. Another 32% said they experienced migraine-related stigma “often” or “very often.”

Of the respondents who reported eight to 14 headache days or more than 15 monthly headache days, 42% and 48%, respectively, reported at least one form of stigma, compared with 26% of those who reported less than four monthly headache days.

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“Stigma is common where the disease is not readily apparent to others, and there is indication that it could be especially relevant for those living with migraine,” study co-author Robert Evan Shapiro, a physician at the University of Vermont and fellow with the American Academy of Neurology, said in an AAN press release.

Shapiro adds the “social context of migraine may have a greater impact on quality of life than the number of monthly headache days. However, it is possible that connecting with others with migraine may help decrease migraine-related stigma and stereotypes. More studies are needed to explore the mechanisms that link stigma to health outcomes.”

The study was published online in AAN’s journal Neurology.

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